GoFundMe page raises more than $25K for Sask. boy with rare genetic condition
A Martensville family is getting support from the community as their 15 month old son battles a rare genetic condition.
In January, Jack’s parents Leslie and Phil Duval started noticing purple spots on his stomach. In March, Jack was diagnosed with a condition called Wiskott Aldrich Syndrome (WAS). Leslie says the condition has left him with critically low platelets, the average for someone his age is 160 to 400, while his are as low as 3. He also has auto immune deficiencies and eczema.
Leslie is paediatric emergency nurse at Jim Pattison Children’s Hospital in Saskatoon. Now she has to sit back and be a mom of a patient.
“It’s harder than I thought it would be to sit back and be a mom instead of a nurse,” said Leslie “I definitely have a lot more empathy towards the families that come into the hospital now.”
Since Jack’s diagnosis, the family has been forced to take five extended trips to the hospital. Currently they make weekly trips for blood work and appointments.
“It’s been extremely difficult. The thing with this syndrome he has is there is a lot of unknowns,” said Phil.
The only cure for his syndrome is a bone marrow transplant.
“It’s hard to sit back and watch your kid go through poke after poke for IVs for blood work,” said Leslie.
The family is trying to stay positive, as their optimistic for a bone marrow transplant in the next few months. When it happens, the family will have to stay sixth months in Calgary.
“It's going to be an uphill battle. It’s not an easy fix.” said Leslie “We have our doctors working really hard right now to try and find the perfect match.”
Leslie and Phil will both have to take time off work to travel for the transplant and their stay in Calgary. A GoFundPage has been launched by friends to help pay for mortage payments, bills, and maintaing two residence along with any medical expenses.
“It’s been incredible to have Melissa and Alanna (GoFundMe organizers) and everybody involved step up for us and help us out.”
In just under two months, the page has raised over $25,000 dollars.
“We’re just trying to be a force behind Leslie and help her as much as we can,” Alanna Franey, a fellow nurse and friend. “It’s not easy watching one of your close friend and struggle with a child who’s sick.”
For the person who has seen a lot in her five years as a nurse to sick children, she knows the staff, the same ones she still goes to work with, are working hard to ensure her kid, can just be a kid.
“He can go to school, play with friends. We don’t have to worry so much about simple little things.”
Saskatoon Top Stories
CTVNews.ca Top Stories
The police official blamed for not sending officers in more quickly to stop the Uvalde, Texas, school shooting is the chief of the school system's small police force, a unit dedicated ordinarily to building relationships with students and responding to the occasional fight.
Speakers at the National Rifle Association annual meeting assailed a Chicago gun ban that doesn't exist, ignored security upgrades at the Texas school where children were slaughtered and roundly distorted national gun and crime statistics as they pushed back against any tightening of gun laws.
Fifty-eight-year-old Vivian Ketchum is set to receive her high school diploma at a graduation ceremony at the University of Winnipeg next month. It is a moment that is decades in the making.
The World Economic Forum’s annual meeting in Davos was met with justifiable criticisms and unfounded conspiracy theories.
An 11-year-old survivor of the Robb Elementary School massacre in Uvalde, Texas, feared the gunman would come back for her so she smeared herself in her friend's blood and played dead.
Students trapped inside a classroom with a gunman repeatedly called 911 during this week's attack on a Texas elementary school, including one who pleaded, 'Please send the police now,' as officers waited more than an hour to breach the classroom after following the gunman into the building, authorities said Friday.
Fragments of a comet broken nearly 30 years ago could potentially light up the night sky Monday as experts predict an 'all or nothing' spectacle.
A new report says Ottawa, Vancouver and Toronto rank among the top 20 cities around the world when it comes to work-life balance.
Transport Minister Omar Alghabra says the federal government is working with groups on the ground to resolve air travel 'bottlenecks' in time for a busy summer.
Cyber security attacks happen every day, and as Regina Public Schools division discovered this week, no one is safe.
'Very upset': Senior housing residents plead for Sask. Housing Corporation to rebuild after winter fire
Former residents of a Carievale seniors housing complex want the Saskatchewan Housing Corporation (SHC) to reconsider its decision to demolish the home.
Premiers from western Canada met to discuss healthcare in their first face-to-face meeting in more than two years in Regina on Friday at the 2022 Western Premiers' Conference.
Pembina Trails School Division is confirming to CTV News that a group of students found a body during community cleanup at Ècole South Pointe School.
Winnipeg police are telling people to find an alternate route this afternoon as they are investigating a fatal crash near the St. Boniface Industrial Park.
'It's one way to be creative': Winnipeg student wants to be a bartender when older; school doesn't like comment in yearbook
Bartender. That is what one Grade 4 student said for the yearbook when asked what he wanted to be when he grows up, an answer the school is asking him to change.
A southern Alberta man who killed three people, including a two-year-old girl, could have the ability to request a release from jail earlier than his original sentence intended, thanks to a landmark Supreme Court decision Friday.
Calgary Flames fans are still coming to terms with a playoff series loss to the Edmonton Oilers Thursday night in a game that saw both controversy and heartbreak following a Connor McDavid overtime goal.
Western Canada's premiers want to reform their health-care systems by expanding services but they say Ottawa first needs to pick up the phone.
A hotly-controversial decision on whether or not to freeze base funding for police in Edmonton was delayed Friday as fallout from a dispute between the mayor and the provincial justice minister continued to rattle political circles.
A 19-year-old man is in police custody after a shooting near Rogers Place after an Edmonton Oilers viewing party ended Thursday evening.
A shelter many expected to remain open until the end of June in Wetaskiwin, Alta., will close a month early.
WATCH | New video appears to show man carrying air rifle on Toronto streets before being killed by police
A man shot dead by police officers near a Toronto elementary school on Thursday afternoon appears to have been captured on home security footage carrying an air rifle moments before the incident.
A 21-year-old Toronto man is facing a slew of charges following a suspected hate-motivated incident at a Jewish school in North York.
Toronto Pearson International is warning travellers and Mississauga residents they may notice unusual activity at the airport this weekend.
As of Friday evening, 26,000 Hydro Ottawa customers remain without power in all neighbourhoods of the city.
Approximately 25,000 people will take part in Tamarack Ottawa Race Weekend on Saturday and Sunday.
Ottawa Bylaw says the "mama and her 4 kittens" were abandoned outside the PetSmart on Innes Road sometime between 6 a.m. and 8 a.m. Friday.
A B.C. mom with a rare, debilitating illness has spent years trying to get the help she needs. Now she's considering medical assistance in dying.
The number of COVID-19 patients in B.C. hospitals hit its lowest point in more than a month this week, and the decline was driven largely by regions outside the Lower Mainland.
Researchers working in partnership with UBC believe an eco-friendly material could help solve the world’s plastic pollution problem.
Is it unconstitutional to make someone pay to get a legal document translated into French? One of Montreal's top lawyers thinks so, and pointed out two other things from Bill 96 that he thinks the courts would most easily find fault with.
Canada's highest court has ruled that Alexandre Bissonnette, who murdered six people at the Quebec City mosque in 2017, will be eligible for parole after 25 years.
Quebec says it is ready to vaccinate people who have come into close contact with monkeypox as soon as Friday.
B.C. speedboat driver arrested with 650kg of meth 'feared for his family's safety,' he told U.S. investigators
New details are emerging after a 51-year-old Alberta man was arrested aboard a speedboat that U.S. authorities say was carrying 650 kilograms of methamphetamine between Washington state and British Columbia.
The emergency department at Port McNeill Hospital unexpectedly shut down on Friday evening due to a staffing shortage.
At least one building was destroyed Friday afternoon as firefighters rushed to a large fire at the vacant Pioneer Square Mall in Mill Bay, B.C.
A Cape Breton father is warning the public of the dangers in the area he lives after his teenager son fell nearly 40 feet over a cliff in Glace Bay.
A lawyer for families of victims killed in the Nova Scotia mass shooting says an 18-hour delay in finding five bodies of those murdered is a sign of "deficient" policing.
The lawyer who represented a man who murdered three RCMP officers nearly eight years ago in Moncton, N.B., said a decision made by the Supreme Court of Canada Friday may potentially change his sentence.
Thursday evening, the Greater Sudbury Chamber of Commerce hosted the 25th annual Bell Business Excellence Awards.
On Friday, there was a walk in Sudbury to remember the remains of 215 residential schoolchildren found in Kamloops, B.C., a year ago May 27.
Staff at the new Sault Metis Centre are getting set for the grand opening Saturday.
Saturday’s powerful storm left a lasting impact across Ontario as city crews continue to deal with the damage. Western University’s Northern Tornado Project reported that two EF-1 tornadoes touched down in London — and on Friday, Environment Canada confirmed it.
A London man is facing impaired-related charges after a vehicle he was driving collided with a gravel truck on Wednesday morning, according to police.
The London Police Service is requesting the public’s help with locating a person of interest after a gun was fired on Richmond Row in the early morning hours of Friday.